My kids love hanging out with Shane and his team from Adamson Lawn Care (www.adamsonlawncare.com)

I recently popped down to my local grocery store with a bottle of wine and farewell card for my favourite cashier, who was working her last shift. Some complications as a result of MS have forced her to retire. Every time I see her, I get a hug as she makes fun of my monstrous grocery bill and comments on how many or how few children I happened to have with me on that particular day.

I find it hard saying goodbye to community helpers. When my mail carrier died a couple of years ago, I was pretty torn up. I got to wondering if everyone gets attached to community helpers the way I do and, wanting to do a temperature check to see if this was “normal”, did some asking around.

From that bit of digging, I now hypothesize that people whose kids have special needs feel particularly connected to community helpers. We become very attached to the various people in the lives/health/development of our children, and perhaps it carries over to community helpers in general.

I’ll never forget how I felt when I found out, a few days before the new school year began, that our school principal was being transferred. This is the kind of news that keeps parents like me up at night. We think about the years spent relationship building, advocating, winning that principal over – all that time, energy and investment, gone. A new principal means having to start all over again.

The same goes for those in the medical profession. When friend and Mabel staffer, Melissa, found out that her daughter’s very first nurse was leaving their hospital, she experienced extreme distress. How can these people just up and move on when we rely on them? There is no such thing as a “simple” transfer in our worlds.

Last month, my son’s young, vibrant and extraordinary speech therapist, Kim Pace, finally lost her incredibly courageous battle against cancer. She leaves behind countless devastated parents of children with special needs.

They say that it takes a village to raise a child. I, for one, appreciate and value every one of those villagers. I will miss Bonnie the cashier and Kim the speech therapist. My village won’t be the same without them.

School starts next week for our boys and I am getting them back into an evening routine before the big day! I am a huge believer in setting regular routines with the kids. In the long run it makes everyone happy. I’m not saying you can’t deviate every once in a while.  Although sticking to a plan allows your children to know what is expected from them and causes less arguments when it is time to turn out the lights.

Here is what a typical evening looks like in our home…

5:15-6:15 pm: Prepare and eat dinner.
6:15-6:30 pm: Clean up after dinner. Make sure lunch boxes are out for the next day. Oldest son loads dishwasher.
6:30-6:45 pm: I take the dog for a walk with or without the kids. This is much more relaxing without the kids.
6:45-7:45 pm: The younger kids play inside or outside, usually climbing on Daddy. My oldest son uses this time for homework if he did not do it after school.
7:45-8:30 pm: Shower time! The kids get showered up, stories read and off to bed.

I know exciting stuff right? I know routines don’t sound fun but I feel it’s necessary to give your family some sort of guideline to go on. Choose a schedule that works for you. You might prefer doing some of your morning chores like packing lunches the night before. I prefer to do them in the morning. I find that in this season in my life I prefer to wake up before the kids and not stay up as late at night. Believe me this has been a very gradual process, I am NOT a morning person. I have found that this just works better for us.

Do you ease your kids back into a school routine?

My father died in December. He had spent the last several years very unwell, and my mother spent a lot of her time taking care of him. That is a difficult situation for any family, but it is even more difficult when the person you are caring for continuously makes choices that contribute to their bad health. And so, although he was a loved man, the result was a team of fairly frustrated family members.

My biggest frustration was trying to understand why he didn’t make choices that would allow him to be involved more fully in the lives of his grandchildren. He adored each and every one of them. Every morning he asked my mother which of his grandbabies was going to visit that day. He had frequent visits from his collection of loving grandkids, who called him The Gaffer. Kids would disappear into his man cave and they’d have the place trashed instantly – toys everywhere, cushions off the couches and the TV channel changed to their station. Every visit was a kid invasion into The Gaffer’s space. Interestingly, he was not at all bothered by the noise or chaos. He was never impatient with them and he certainly never snapped at any child. Visits ended with hugs, kisses and “I love you’s”.

I felt that relationship wasn’t good enough because he didn’t actually DO anything with my children. His illness made it so he couldn’t – that pesky illness that didn’t really have to be there. My dad never read to the children, and certainly never played a board game or did a puzzle with them. He didn’t take them out for walks or do any of the other things I see active grandparents doing with their grandchildren. It made me sad that he was missing out. And, so were my kids.

Apparently, I was wrong. A couple of weeks after his death, my 9-year-old daughter emerged from her bedroom at midnight to share a drawing of him. Included in the illustration were several messages and statements – one for each day since he had died. The most striking message to me was “I loved EVERYTHING about you”.

All that time I thought he wasn’t DOING anything with his grandchildren, he was very actively doing the thing that was most important to them. He was loving them. And it was all they needed.

Rather than "shush" my kid, I just throw another plug in his gob

I’m a little bit nosey and don’t pretend otherwise. On my recent travels to a conference, I injected myself into a couple of situations that were none of my business. I just couldn’t help it.

The first was on my way to the conference. Across the aisle from me sat a mother and her surfer dude teenaged son. He was polite, respectful, handsome – he pretty much had all the qualities I hope my kids have as teenagers. He also happened to be living with Down Syndrome. At one point he was making a few noises. I didn’t take much notice because I’m surrounded by noisy people all the time. Then, from somewhere nearby a random passenger let out the loudest, rudest SHUSH I’ve ever heard. I was angry and determined to find the culprit. I wanted to give the SHUSHER a piece of my mind. All my investigations were pointless – the SHUSHER would not come forward and admit to the SHUSHING.

On the way home came Nosey Parker incident #2. A young dad was sitting behind me and having a cell phone conversation with the mother of his baby. They were discussing her plans for the next day. It sounded like she had a fun event to attend with a group of friends. The dad expressed a bit of concern about taking care of the baby because he was exhausted from his work travels. He did the right thing – told her her to carry on with her plans but that he would find a babysitter for a couple of hours to get some rest before enjoying the rest of the day with his kid. Their phone call ended and a few quick calls to babysitters from the tarmac were made and he had it all sorted out. Happily, he called his baby mama back and explained that all was organized and that he was thrilled that she would have a well deserved day out with her friends. She must have announced that she decided to cancel the plans because he spent the next few minutes saying things like “but you deserve to go out” and “it’s not a hassle at all, I’m looking forward to having the day with my daughter”. Despite begging her to go, she could not be convinced. When he got off the phone, I heard a huge sigh of defeat and frustration.

Clearly, I know nothing about them, their relationship or how they share parental responsibilities. However, I couldn’t stop myself from turning around, admitting to eavesdropping and congratulating him on trying so hard to make it work – for wanting his partner to have a day out with her friends. Sure, I risked having him tell me to mind my own business but it was worth it when I looked at his exhausted big brown eyes and heard his whisper: “Thank you so much”.

It’s tough to know when to inject ourselves into a conversation or situation that we’re not directly involved in. For me, often my gut responds before my brain has the chance to make a decision. The greatest risk for the Nosey Parker is humiliation. For those of us who have experienced enough of that already, it’s not a risk that gets a whole lot of consideration.